AUSTRALIAN COALITION FOR ENDOMETRIOSIS

The Australian Coalition for Endometriosis is the peak consumer and advocacy body representing the needs of girls and women with Endometriosis in Australia. The Pelvic Pain Foundation of Australia is proud to be a member of ACE, together with Endometriosis Australia, EndoActive, the Queensland Endometriosis Association and the Canberra Endometriosis Network.

Girls and Women with endometriosis have suffered pain for too long. ACE has been at the forefront of change, working with politicians to make positive change.

On December 5th 2017, Health Minister Greg Hunt sincerely apologised on behalf of the government to the girls and women with Endometriosis who have suffered too much pain for too long. He committed the government to developing a National Action Plan for Endometriosis and announced that Endometriosis will be a targeted condition for the Medical Research Future Fund.

This announcement was made at the launch of the Parliamentary Friends of Endometriosis Awareness group, held at Parliament House in Canberra and attended by the Health Minister, Greg Hunt, Shadow Health Minister, Catherine King, Government Whip, Nola Marino, MP Mike Freelander, and MP Justin Lessey.

This process has been overseen and determined by the 5 principle stakeholder groups of ACE – EndoActive, Endometriosis Australia, the Pelvic Pain Foundation of Australia, the Queensland Endometriosis Association and the Canberra Endometriosis Network – representing advocates, patients, support networks, awareness and research groups around the country. It has come out of a bipartisan collaboration between MPs Nicolle Flint and MP Gai Brodtmann.

ACE has developed a 5-point action plan with the priorities for change:

– greater awareness of Endometriosis and it’s impact through public campaigns

– greater education at a school level for young people

– the prioritising and creation of clinical care pathways for period pain to guide health professionals in the management of severe period pain

– the accelerated investment in targeted Endometriosis research

and importantly, and overarchingly, that Endometriosis become Australia’s 10th National Health Priority Area.  

The PPFA representatives on ACE are Ms Libby Parker and Dr Susan Evans