Knowing you’re not alone…
Joining an online or in-person support group can be a very helpful strategy for those with pelvic pain. Many of these groups have been formed specifically for those with a condition associated with pelvic pain such as Endometriosis, Adenomyosis, Interstitial Cystitis/Painful Bladder Syndrome, and more. Groups are also often created to serve people in a specific location by state, region, or city.
When joining an online support group, most commonly on Facebook, you will likely have to answer questions to be approved to join the group. Often, this will involve reading and agreeing to the group rules. Reading the rules of an online group can also help you to decide if this is the right space for you.
Support groups can be a wonderful resource to find others that may have similar experiences to you. This can help people feel less isolated, have somewhere to share their story, and have people support and validate one another and what they are going through. Many find the feeling of community in these groups helps them to feel better about their health mentally, emotionally, and sometimes physically too.
When using support groups, it’s important to make sure that information or advice given by members is accurate and appropriate before acting on it. Your GP or specialist doctor should be consulted before following any advice you find in an online support group. It’s also helpful to remember that what works for someone else, might not be right for you and your situation.
SUPPORT GROUP LINKS
Tasmania Endometriosis Support Group
Australian & New Zealand Women With Endometriosis Support Group
Endometriosis Victoria support group
Melbourne Endometriosis Sisters
Endometriosis Australia education and discussion group
Interstitial Cystitis Network Australia
Endometriosis Western Australia