The Pelvic Pain Foundation of Australia, www.pelvicpain.org.au, is a not-for-profit charity co-founded in January 2015 by Dr Susan Evans, Ms Kathy Allen, Ms Donna Benge and Dr Meredith Craigie. Formed to promote education and research in the area of pelvic pain, the Foundation began the process of providing advocacy, information and assistance to girls, women and men with pelvic pain.
The need for a body representing those with pelvic pain was first recognised at the National Pain Summit held at Parliament House, Canberra in 2010. The Pain Summit considered the needs of a wide range of Australians with pain and developed Australia’s first National Pain Strategy. However, it was recognised in 2010 that the special needs of those with pelvic pain had not been addressed.
In 2011, the Pelvic Pain Steering Committee in collaboration with Pain Australia and the Faculty of Pain Medicine, looked at ways of remedying this problem. Their report entitled ‘The $6Billion Woman and the $600 Million Girl: The Pelvic Pain Report’ consulted widely with health professionals and those affected by pelvic pain to outline the problems with current pelvic pain services and policies. It made recommendations on how these problems could be overcome. Since then, the extent of pelvic pain in men has also been recognised.
The Pelvic Pain Foundation of Australia has taken up the challenge of implementing these recommendations and representing the interests of those with pelvic pain regardless of age or gender.
In 2018, the PPFA developed PPEP Talk Program – explaining pain, periods and endometriosis to Australian teens will be provided to schools throughout South Australia, as a collaboration between the Federal Government and the SA State Government, and a pilot for extension to other Australian States.