Research Surveys you can join

Why complete a survey?

At the Pelvic Pain Foundation we are approached by researchers from different backgrounds keen to learn more from girls, women and men about their experiences. They are grateful to those who complete the survey, and often continue on to other pelvic pain research, based on what they’ve learned from the survey.


So, will it benefit you? No. Not directly. However, one of the major things holding up progress in pelvic pain, is a lack of research, and a lack of data to support extra services. Being involved in research is something that allows your voice to be heard, and helps those people with your condition in the future. They include an opportunity to be informed of the outcome of the study when it is finally completed and published, although that can be a few years down the track.

This page has surveys that are looking for your help now.

Endometriosis Management in Australia Study

Who they want to contact?  Women with Endometriosis who are 18 and over

What they want to research? Your experience of living with Endometriosis in Australia.


Beck O’Hara, Prof. Jane Fisher, Dr. Heather Rowe, A/Prof. Louise Roufeil

Jean Hailes Research Unit, School of Public Health and Preventive Medicine,
Monash University


PhD candidate Beck O’Hara is exploring how women with endometriosis in Australia manage their condition. She is keen to hear about your experiences with endometriosis, your medical history and what treatments you have tried. Beck is further exploring whether self-management can play a role in this complex condition.

What happens to the information?

It is intended that information about women’s experiences with endometriosis will inform improvements in clinical practice, health promotion and public policy in Australia. The results from this survey will be published in journal articles and presented at conferences in summary form so no individual can be identified.


Will I be told the survey results?

A summary of the findings will be available from the study website when they become available. If you choose to participate, you will be have an opportunity to enter your email address and receive a summary of the results. All data will be reported in summary form so no individual can be identified. This project is part of a PhD project due for completion in May 2019. It takes a long time to analyse data, so results are unlikely to be available before 2019.


How do I join the survey? – Visit them on Facebook

And if I have questions?

You can email them at:

Or call them on: (03) 9903 0788

Endometriosis Self Care Survey

Who they want to contact: Women with Endometriosis over 18 years

What they want to research: What you’ve tried? And what worked?


Dr Mike Armour, Mr Justin Sinclair, Ms Jane Chalmers and Professor Caroline Smith

Western Sydney University

Whether it is Yoga, Meditation or Cannabis, They’re keen to learn what women in the community are using right now, what works and how you found it? They want to learn from you what works, and what doesn’t, so they can direct their future research into those areas.

The survey takes about 5-15 minutes to complete.


What happens to the information?


This information will provide other women who have endometriosis information on what others have tried and found helpful, It will also collect information on any risks or side effects women have experienced. This may help women decide what they would like to try to manage their own symptoms. We will also use this information to help us guide future research into areas that women find effective.


Will I be told the survey results?


PPFA will post a free PDF summary of the results on our site, once it is available.


How do I join the survey? – go the link below:


And if I have questions?

You can contact the researchers at

Links Between Chronic Pain and Comfort Eating

Who they want to contact: Anyone over 18 years with chronic pain who has never had an eating disorder or weight-loss surgery.


What they want to research: How chronic pain affects your mood – increasing the likelihood that you comfort eat during a ‘flare-up’.


Imogen R O’Loughlin and Dr Toby Newton-John

University of Technology, Sydney

What are the psychological treatments that will reduce the likelihood of comfort eating in response to pain? By discovering the triggers to comfort eating Imogen aims to break the vicious cycle of pain-induce comfort eating, weight gain, obesity and worsened pain and disability.

The survey will take between 20 – 30 minutes.


How do I join the survey? – go the link below:

You’ll find an information sheet with a ‘Next’ button at the bottom to progress to the survey.

If you’d like to be informed of the survey results a one page summary will be available towards the end of 2018.


Sexual pain presentations and sexual diversity

Who they want to contact: Women over 16 years that experience pelvic pain with sexual activity.

What they want to research; How all women, with their diverse sexualities, experience painful sexual activity and treatment for it.


Dr Charlene Rapsey, Brooke Battersby

Department of Psychological Medicine, Dunedin School of Medicine, University of Otago, NZ

We aim to investigate heteronormative assumptions associated with the assessment and management of sexual pain and explore how this influences the experiences of women from sexually diverse backgrounds.

This survey will take less than 10 minutes.


How do I join the survey? – go to the link below:


What happens to the information?

This information will help achieve more equitable outcomes in treatment and care for pelvic pain conditions for women of all sexualities and circumstances.


Will I be told the results?

A summary of the project and its findings will be available from the University of Otago library website once available.


And if I have any questions?

You can email Brooke Battersby at: or