Endometriosis Coalition

The Endometriosis Coalition is the peak national body for endometriosis and pelvic pain. It unites patients, healthcare professionals, researchers, advocacy groups, and industry to drive collaboration, influence policy, and promote investment in research. The Pelvic Pain Foundation of Australia is proud to be a founding member.

The Coalition’s priorities are to achieve national awareness, set higher clinical care standards, accelerate research, and foster partnerships across sectors, with the ultimate goal of recognising endometriosis as Australia’s 10th National Health Priority Area.

Working closely with government, health professionals, and community organisations, the Coalition empowers those affected and has already led the development of the world’s first National Action Plan for Endometriosis.

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How the coalition came to be

The Pelvic Pain Foundation of Australia is proud to be one of the five members of the Endometriosis Coalition, together with Endometriosis Australia, EndoActive, QENDO and Endometriosis Western Australia.

Girls, women, and people assigned female at birth with endometriosis have suffered pain for too long. The Endometriosis Coalition has been at the forefront of change, working with politicians to make positive change.

On December 5th, 2017, Health Minister Greg Hunt sincerely apologised on behalf of the government to those with Endometriosis who have suffered too much pain for too long. He committed the government to developing a National Action Plan for Endometriosis and announced that Endometriosis will be a targeted condition for the Medical Research Future Fund. This announcement was made at the launch of the Parliamentary Friends of Endometriosis Awareness group, held at Parliament House in Canberra and attended by the Health Minister, Greg Hunt, Shadow Health Minister, Catherine King, Government Whip, Nola Marino, MP Mike Freelander, and MP Justin Lessey.

This process has been overseen and determined by the 5 principal stakeholder groups of the Endometriosis Coalition - representing advocates, patients, support networks, awareness and research groups around the country. This bipartisan collaboration has continued with the support of the Former Assistant Minister for Health, the Hon Ged Kearney MP, and now the current Assistant Minister for Health, the Hon Rebecca White MP.

ACE has developed a 5-point action plan with the priorities for change:

• greater awareness of Endometriosis and its impact through public campaigns

• greater education at a school level for young people

• the prioritising and creation of clinical care pathways for period pain to guide health professionals in the

  management of severe period pain

• the accelerated investment in targeted Endometriosis research

and importantly, and overarchingly, that Endometriosis become Australia’s 10th National Health Priority Area.

The PPFA representatives on the Endometriosis Coalition are Associate Professor Susan Evans and Ms Renee Rankin.

(Photo top: Endometriosis Australia Chair Jessica Taylor, joined by bipartisan government support, and sector stakeholders, including Maree Davenport, Prof. Grant Montgomery, Jodie Avery, Christina Ng from Gedeon Richter. Photo below: The launch of the National Action Plan for Endometriosis, Parliament House, Canberra, December 2017. Present: Minister Greg Hunt, Shadow Minister, Catherine King, Government Whip, Nola Marino, MPs Nicolle Flint and Gai Brodtmann, Dean of the Faculty of Pain Medicine, Dr Meredith Craigie, representatives of the 5 ACE organisations, Pelvic Pain Foundation of Australia, EndoActive, Endometriosis Australia, Queensland Endometriosis Association and Canberra Endometriosis Network)